Lily on her Crawling Track
Our beautiful daughter Liliana Celeste was born with a severe brain-injury that occurred during pregnancy due to a virus called CMV. Her cerebral palsy has caused global developmental delays. Lily was born in 2003. She is learning to crawl, stand, walk, talk, use her hands, problem solve and eat solid food. We work with her 10-12 hours a day to stimulate her brain.
We have been working with her for over 4 years in an Intensive Treatment Program prescribed by The Institutes for the Achievement of Human Potential in Philadelphia (www.IAHP.org) She is progressing and showing improvement continually which encourages our determination to get our daughter well.
Our family travels to Philadelphia, PA from Hollywood, FL every six months to attend Liliana’s Intensive Treatment Program appointment. At the Institutes Liliana is prescribed a specific home program. This program is costly, it requires travel, tuition, custom made equipment, respiratory equipment, specific educational materials and dietary supplements. One parent implements the program at all times.
Lily's Intelligence Program
Liliana’s Program takes place daily from 9am-7:00pm at our home in Hollywood, FL. She has a Physical Program, an Intellectual Program and a Physiological Program focused on respiration and diet. Activities in her program require hours of dedication and space for all of the equipment required.
Lily in her VKE Device
We currently have a gym set up with much of Lily’s special equipment in the master bedroom of our home. The rest of her equipment is in the living room. Our home is a villa, approximately 1400 square feet. Liliana’s program requires more space. Lily has outgrown the current gym and needs a 300 square foot sunroom built to code to extend the space to accommodate for all of her needs. Space that we need to continue to get her well.
Our family of four is carrying out the program on one main income, which is a Teacher Salary. My husband who is a dedicated, loving, father has worked as many as 5 jobs to make ends meet. He is a Miami Dade Middle School Science Teacher, Soccer Coach, Tennis Coach, Tutor and Translator. We try our best to care for both of our children and to provide all the resources necessary for them to succeed in life.
We are thankful to receive donations and help from family, friends, volunteers, members of the community, nationally and internationally to give Liliana the opportunities she needs to reach her full potential.
"Thank you!"
