LilysWellness.org » Thoughts & Feelings

Great song from Javier Mendoza

HenryGR — Tue, 18 Oct 2011 09:01:52 +0000

Singing in English and Spanish Javier is a gifted singer song writer
illustrating his Spanish/Mexican culture through pop, rock and his
heart felt songs and stories. His song “With You” is here for you to
delight:

Lily is Transformed into a Beautiful Butterfly!

patricia — Wed, 24 Aug 2011 17:45:29 +0000

World renowned face and body painter Lynne Jamieson created a work of art to prepare Lily for the upcoming 2012 Lily’s Well-NESS Calendar. It is so wonderful when Lily participates in age appropriate activites that she enjoys. This is the first time getting her face painted. Thank you Lynne for graciously donating your time.

Lily and Roy

arturo — Sat, 02 Jul 2011 20:50:26 +0000

Roy Haenel reading with Lily

Lily is a real sweetheart. I always look forward to seeing her and I am happy to see her. She has a cheerful smile. I enjoy reading with her, we watch baseball together sometimes. I love holding her on my lap and reading to her. I especially love her smile. I know she has a full therapy schedule and wonderful people work with her together with her parents.

by Roy Haenel

Roy is a volunteer and dear family friend. He visits with Lily and our family every week. He has done so for the past 6 years. Roy is a faithful supporter of Lily’s Well-NESS. We give thanks for you Roy!

Thank you Douglas Doman

patricia — Sun, 05 Jun 2011 18:02:03 +0000

Arturo Tenacio, Spencer Doman, Douglas Doman, Patricia Parron

Thank you Douglas Doman for coming to South Florida to lecture. Your lectures are informative, enlightening and necessary for all parents. Parents of hurt children, as well as parents of well children, can encourage and help their children to reach their fullest potential with the right tools. With the introduction of viable knowledge and awareness many parents walked away with the inspiration and hope to get their children well! We look forward to your return. We hope South Florida will become one of your destinations to lecture for many years to come. It was an honor and a dream come true to host The Institutes for the Achievement of Human Potential here in our community.

Thank you Miami Children’s Museum

patricia — Sat, 04 Jun 2011 17:46:56 +0000

Thank you Miami Children’s Museum for your support and sponsorship for the Lectures given by Douglas Doman of IAHP. The Day was a success! A special thanks to Deborah Spiegalman, Betty Aguilar, Hector Castillo and Zuzel Oria. It was a pleasure working with you.

Thank You Javier Mendoza

patricia — Mon, 21 Mar 2011 03:25:07 +0000

Thank you Javier Mendoza for an uplifting, memorable concert in St. Louis, MO! Your talent is amazing and your performance meant the world to us. Thank you to everyone who made this night possible, especially Kevin and Allegra Grawer our dear friends. The concert at The Chapel has taken Lily’s Wellness to another dimension. We appreciate all of the support, love and compassion we received from everyone in St.Louis.
Visit www.javiermendoza.com

It’s Lily’s Birthday!!!

arturo — Wed, 17 Nov 2010 15:34:48 +0000

Happy Birthday Lily!

November 17th is Lily’s 7th Birthday. We are very excited to share her birthday and these seven years of parenting. We want to celebrate her life with…many more than seven ways she has positively impacted our life:
She loves her family
She has given us a sense of what really matters
She is a very fast reader
She loves to travel
She loves to be loved -and she gives back
She has taken us to a higher level of patience, compassion and awareness.
She inspires us to be better people.
She has introduced us to exceptional people.
She has given us the opportunity for self-improvement, including knowledge of the brain that opens up a whole new world of recovery. As well as the opportunity to share this knowledge with others.

Thank you, Lily for being our daughter. Thank you for being you………. You enrich our lives everyday in so many ways.

Papà, Emilio and Lily

We encourage you to leave a comment stating how Lily has impacted your life to celebrate her birthday!

Halloween is here

arturo — Sun, 31 Oct 2010 02:48:07 +0000

Papá vampire

I can´t help but remember the adorable scarecrow costume that our son Emilio wore on Halloween when we lived in Madrid; he was so sweet and innocent. I am sure birds would have come and stay just to sing and bring his scarecrow self joy.
Autumn is here (you really have to make an effort to feel it in Florida) and tradition reminds us of the mysterious, that we can not reach but still reaches us, it is an invitation for reflection. In the past the lack of light and heat meant seclusion and silence, long nights and short days versus the joyous and bright Summer. With darkness comes fear and with fear all kinds of rituals to scare it away.
When brain injury hits someone close to you ,it creates a good amount of fears; fear to the unknown, what will become of that person, a feeling of fragility, how vulnerable our own condition is, fear to abandon or of being abandoned, fear of having to make radical changes in your life…and these are only a few. However, where fears lie discoveries can also be found, opportunities to grow, understanding, find meaning, travel to more valuable destinations.
Fear is paralyzing and does not allow you to see anything other than feeling threatened, coerced. It holds your present hostage and annuls your future because they turn dark and so you are at risk of losing everything. After all, who are we without present or future?
Discovery embraces and accepts, not without pain, but it melts in it, it becomes it and gets transformed as a chrysalis and flies to colorful destinations, not without grey hues. With discovery you move forward as an individual and as a species, you feel part of the solution rather than part of the problem.
My life, our life as a family, is a permanent ongoing discovery. I invite you to get a ticket to join this privileged journey fearlessly.

Bye from Rosa

patricia — Wed, 27 Oct 2010 16:54:56 +0000

This is a letter written by Rosa Candelabrio. Rosa worked with Lily as her HHA (Home Heathcare Aide)

Rosa and Lily

Bueno en solo 3 meses de servicio y convivencia con Liliana Tenacio junto a su familia puedo decir que fue una experencia inolvidable Lily es una paciente exelente es super linda y una princesa, aprendi a quererla bastante es una ternura de niña. Cada dia con Lily era algo nuevo y a la vez emocionante puesto que Lily es una paciente estremadamente inteligente y lista lo que me impresionaba a mi, la quiero mucho mucho. Emilio su hermanito es un amor de chico para mi es unico en todo el sentido de la palabra. El Sr.Tenacio y la Sra. Parrón para mi son un verdadero ejemplo de personas son muy amorosos y comprensivos siempre buscan la manera de ayudar a los demas y eso es una virtud muy linda, como TODOS ellos lo son….. LINDOSS!!!!!!!!!!!

Translation:

During 3 months of service with Liliana Tenacio together with her family, I can say that I had an unforgettable experience with Lily. She is an excellent patient. She is a beautiful princess. I came to love her very much since she is a sweet girl. Every day with Lily provided a new and emotional experience for me since Lily is so intelligent and smart. Her intelligence had a real impression on me which made me love her more and more. Her brother Emilio is a loving and unique boy in every sense of the word. Mr. Tenacio and Ms. Parron are a true example of very loving and compassionate people. They always try to help others. This is a beautiful virtue that they all share and this makes them very special!!!!!!!

Getting Ready for Lily’s IEP Meeting (Individual Educational Plan)

patricia — Thu, 30 Sep 2010 12:48:08 +0000

Getting ready for Lily’s IEP takes place twice a year. Lily is a hospital home-bound student for Broward County. At the IEP meeting, academic, physical and social goals for Lily are discussed for the school year. Her teacher and 3 therapists will be present or via telephone. Consultants for vision and Deaf and Hard of Hearing will be present. The ESE specialist for her home school will document the meeting and spearhead the discussions. The ESE specialist for the Hospital Home-bound program will be via telephone. Our Family Councilor will be there. Although I am an educator and Lily’s professional mother, the IEP is always somewhat stressful. At this meeting there are an average of 10 school board employees whose job is to assure Lily has her academic needs met. Each one has a specific role and opinion in reference to what is best for Lily as far as her schooling is concerned. Ultimately parents have the last say on what should be addressed and implemented during the school day. I say this to all the parents out there who go through the same meetings and advocate for their special needs child. In the past I have gone to the meetings with an advocate. An advocate is someone who goes to IEPs on a professional basis to support parents in the decisions made during the meeting. For parents, the IEP is emotional and having someone with you is important. Someone to offer a smile, a shoulder to lean on, to give you an orientation on how the meeting will be run and how to go about advocating for your child best. These days, I have attended on my own. Today I have invited a dear friend to come with me. At this point, I know most of the professionals who come in contact with Lily or with her file. After 4 years of IEP meetings, it’s time to celebrate Lily’s accomplishments, how far she has come, what we expect from her this year and have a meeting among peers. I feel I am truly part of the team now, that I know almost everyone around the round table. This year I have prepared a special slide show of Lily’s summer vacation to share with everyone and some light refreshments. I would like to show my appreciation to everyone who comes in contact with our daughter and is genuinely concerned for her well being and intellectual stimulation. With a child as complex as Lily, her file is lengthy, complex, unique, just as she is. I will be strong when we discuss everything Lily needs help with, is not able to do, what we would like her to accomplish this year. I will smile and know how far she has come and try to transmit this. I will be proud to be a mother with an exceptional special needs child. I will share glances and smiles with the professionals who support Lily and our family in giving her the best life. I will show my face and be strong and proud. Lily, thank you for this opportunity to support you and be there for you. I do this with all my love, the best I can so you continue to have the best life we can give you, together.