LilysWellness.org » Lily’s Updates

Lily is Transformed into a Beautiful Butterfly!

patricia — Wed, 24 Aug 2011 17:45:29 +0000

World renowned face and body painter Lynne Jamieson created a work of art to prepare Lily for the upcoming 2012 Lily’s Well-NESS Calendar. It is so wonderful when Lily participates in age appropriate activites that she enjoys. This is the first time getting her face painted. Thank you Lynne for graciously donating your time.

Lily’s Intensive Treatment at IAHP

patricia — Wed, 15 Jun 2011 18:35:44 +0000

Liliana Tenacio at IAHP

Lily spent over a week at IAHP receiving an intensive treatment. She is showing great improvement in the mobility of her left arm. We are very pleased to see her so happy and so motivated to move independently! Over the course of the week, Lily moved longer distances and more effectively using her left arm like never before. She is ready to move on her own and happy about the changes she is experiencing in her body. We are so proud of you Lily! You are amazing!

Thankyou Equus for Humanity…

patricia — Thu, 18 Nov 2010 22:32:21 +0000

Emilio and Lily on horseback!

Thankyou to everyone at Equus for Humanity for a memorable time on Lily’s birthday. A special thanks to Dr. Burrows for all of her love, kindness and patience. Emilio and Lily were so beautiful on horseback. They truly enjoyed it. We all watched with excitement and tears of joy as we witnessed them participate in this new experience. Thank you to all of our family and friends who shared this amazing day with us.

I'm riding, I can do it!

Emilio and Lily reach out for eachother

Thankyou to all our family and friends who called Lily and sent her well wishes. She loved every minute of it. She was sooooooooooo happy.

: I love the phone!!!

Lily on the phone on her birthday

It’s Lily’s Birthday!!!

arturo — Wed, 17 Nov 2010 15:34:48 +0000

Happy Birthday Lily!

November 17th is Lily’s 7th Birthday. We are very excited to share her birthday and these seven years of parenting. We want to celebrate her life with…many more than seven ways she has positively impacted our life:
She loves her family
She has given us a sense of what really matters
She is a very fast reader
She loves to travel
She loves to be loved -and she gives back
She has taken us to a higher level of patience, compassion and awareness.
She inspires us to be better people.
She has introduced us to exceptional people.
She has given us the opportunity for self-improvement, including knowledge of the brain that opens up a whole new world of recovery. As well as the opportunity to share this knowledge with others.

Thank you, Lily for being our daughter. Thank you for being you………. You enrich our lives everyday in so many ways.

Papà, Emilio and Lily

We encourage you to leave a comment stating how Lily has impacted your life to celebrate her birthday!

Getting Ready for Lily’s IEP Meeting (Individual Educational Plan)

patricia — Thu, 30 Sep 2010 12:48:08 +0000

Getting ready for Lily’s IEP takes place twice a year. Lily is a hospital home-bound student for Broward County. At the IEP meeting, academic, physical and social goals for Lily are discussed for the school year. Her teacher and 3 therapists will be present or via telephone. Consultants for vision and Deaf and Hard of Hearing will be present. The ESE specialist for her home school will document the meeting and spearhead the discussions. The ESE specialist for the Hospital Home-bound program will be via telephone. Our Family Councilor will be there. Although I am an educator and Lily’s professional mother, the IEP is always somewhat stressful. At this meeting there are an average of 10 school board employees whose job is to assure Lily has her academic needs met. Each one has a specific role and opinion in reference to what is best for Lily as far as her schooling is concerned. Ultimately parents have the last say on what should be addressed and implemented during the school day. I say this to all the parents out there who go through the same meetings and advocate for their special needs child. In the past I have gone to the meetings with an advocate. An advocate is someone who goes to IEPs on a professional basis to support parents in the decisions made during the meeting. For parents, the IEP is emotional and having someone with you is important. Someone to offer a smile, a shoulder to lean on, to give you an orientation on how the meeting will be run and how to go about advocating for your child best. These days, I have attended on my own. Today I have invited a dear friend to come with me. At this point, I know most of the professionals who come in contact with Lily or with her file. After 4 years of IEP meetings, it’s time to celebrate Lily’s accomplishments, how far she has come, what we expect from her this year and have a meeting among peers. I feel I am truly part of the team now, that I know almost everyone around the round table. This year I have prepared a special slide show of Lily’s summer vacation to share with everyone and some light refreshments. I would like to show my appreciation to everyone who comes in contact with our daughter and is genuinely concerned for her well being and intellectual stimulation. With a child as complex as Lily, her file is lengthy, complex, unique, just as she is. I will be strong when we discuss everything Lily needs help with, is not able to do, what we would like her to accomplish this year. I will smile and know how far she has come and try to transmit this. I will be proud to be a mother with an exceptional special needs child. I will share glances and smiles with the professionals who support Lily and our family in giving her the best life. I will show my face and be strong and proud. Lily, thank you for this opportunity to support you and be there for you. I do this with all my love, the best I can so you continue to have the best life we can give you, together.

Gravity Assisted Environment

patricia — Tue, 06 Apr 2010 00:12:43 +0000

Lily loves her new program walking 3x daily in her gravity assisted environment. This is the best part of the day. Lily you are so beautiful walking!

Lily walks to Roy

Lily loses her first tooth :)

patricia — Sat, 29 Aug 2009 13:21:12 +0000

Lily has experienced something today that most children look forward to. Loosing your first tooth is always exciting for kids and a call for celebration. Lily lost her first tooth today! This was a moment of smiles and joy for all of us, especially Lily. This is the first time she has joined her peers with no delay (most well kids loose their first tooth between 5 and 6 years old). We are all celebrating this with Lily. Emilio, Mommy and Papa can’t wait to see what the Tooth Fairy brings!